Posts in Pulmonary Fribosis/IPF
Protecting Lung Health during wildfires

The devastation and loss of life caused by the wildfires in California this month has been horrifying and upsetting. As well as the terrible destruction at the sites of the wildfires, the resulting impact on air quality has had serious health implications for people hundreds of miles away from the fires themselves. At one point, the air quality in San Francisco was rated the world’s worst as smoke and particles from the fires filled the air.

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Considering a lung transplant? Takeaways from the Lung Transplant Congress

patientMpower attended the International Congress on Lung Transplantation.  It brought together a fantastic range of pulmonologists, nurses, scientists and other professionals from all over the world working to improve outcomes in Lung Transplantation. The topics covered were many and varied, so here we’ve condensed a few takeaways for people considering a lung transplant.

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patientMpower PF awareness month video chats - Michele Peters

September is a global month long campaign to help raise awareness of Pulmonary Fibrosis, aid timely diagnosis and help patients with pulmonary fibrosis to get the treatment and care that they need.
At patientMpower we will be involved in lots of activities for Pulmonary Fibrosis month – This video is the first in our video series for the month. We’re delighted to be joined by Michele Peters from Team Jeffery for PF for our first video of the month.

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Endorsement by EU-IPFF

We are delighted that our app for IPF has been recently been endorsed by the EU-IPFF.
The European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF) is a non-profit organization that brings together European national patient associations committed to defending their vision of equal access to treatment and care for all IPF patients. They aim to serve as a trusted resource for the IPF community by raising awareness, providing disease education, advancing care, and supporting research for IPF whilst defending the interests of IPF patients at European level.

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Air Quality & it’s impact on Idiopathic Pulmonary Fibrosis (IPF) patients

We’re glad to see research from Johannson et al on impact of air pollution on Idiopathic Pulmonary Fibrosis (IPF) patients. Their research looked at home spirometry data and symptom diaries from 25 patients and used their residential address to estimate the weekly mean air pollution exposures from ozone (O3), nitrogen dioxide (NO2), and particulate matter (PM2.5 and PM10).

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