For the latest in our video chats for Pulmonary Fibrosis awareness month, we’re joined by Angela Perillo from the American College of CHEST physicians. Angela talks through different educational activities which CHEST organizes to raise PF awareness, including next month’s annual CHEST meeting in San Antonio Texas.
September is a global month long campaign to help raise awareness of Pulmonary Fibrosis, aid timely diagnosis and help patients with pulmonary fibrosis to get the treatment and care that they need. This is our second Pulmonary Fibrosis chat of the month – & we’re delighted to be joined by Emmy award winner Mike Olsen.
September is a global month long campaign to help raise awareness of Pulmonary Fibrosis, aid timely diagnosis and help patients with pulmonary fibrosis to get the treatment and care that they need. At patientMpower we will be involved in lots of activities for Pulmonary Fibrosis month – This video is the first in our video series for the month. We’re delighted to be joined by Michele Peters from Team Jeffery for PF for our first video of the month.
My name is Kevin Seals. I am 60 years old and live in Bone Gap, IL. I was diagnosed in October of 2012 with Idiopathic Pulmonary Fibrosis (IPF). I first noticed I had constant fatigue, chills, and leg cramps. I was unable to improve my jogging even after working out for six months.
Hi, my name is Seán O’Muircheartaigh, I’m 73 and located in Galway, Ireland. I was a patient in Galway Regional Hospital with an undiagnosed illness about five years ago. A computed tomography (CT) scan identified by my doctor showed suspicious darkening at the base of my lung. I was transferred to another hospital where they carried out a full scale investigation and confirmed idiopathic pulmonary fibrosis (IPF)
Tell us about patientMpower in brief: patientMpower is a digital healthcare company providing technology solutions for patients across a range of therapy areas including pulmonary fibrosis (IPF), renal dialysis and renal transplant. Our aim is to empower better outcomes by facilitating patients to better manage their care.
Hi, my name is Mike Olsen and I’m from Louisville Kentucky. I am an idiopathic pulmonary fibrosis (IPF) warrior patient. I started having trouble after an ice storm in December 2012. I kept also having allergy problems and when I kept being treated time and time again for sinus infections my allergy doctor sent me to a pulmonologist, because I always had bronchitis every winter.
Hello! My name is Glenda Rouland, I’m from Birmingham, Alabama and I’m 65 years old. I was diagnosed with idiopathic pulmonary fibrosis (IPF) in October of 2015 after I went to see my Doctor because of feeling short of breath.
Hello! My name is Beth Hunley and I am 56 years old. I live in Portland, Indiana. I was diagnosed with idiopathic pulmonary fibrosis (IPF) by a lung biopsy in April of 2014. I am currently on the lung transplant list as of March 2017.
Hi, my name is Curt Thompson of Richland, Mississippi and I’m 71 years old. I was diagnosed with idiopathic pulmonary fibrosis (IPF) in August of 2015. My wife, her identical twin sister and one of their cousins (a 62 year old male) have all passed from IPF.
Hello! My name is Nicola and I am a Director of the Irish Lung Fibrosis Association (ILFA), the national patient organisation for patients and carers affected by lung fibrosis in Ireland. My mother, Denise, was diagnosed with idiopathic pulmonary fibrosis (IPF) at 56 years of age and I was her caregiver when her health deteriorated. I know first-hand about the daily struggles faced by patients living with IPF. I joined ILFA as a committee member in 2007 and have been involved with the patient organisation since then.
Hi, my name is Nancy Suarez Lee from North Richland Hills, TX. I’m 59 years old and was diagnosed with pulmonary fibrosis (PF) in 1995 as I had a predisposition to PF due to a genetic condition called Hermansky Pudlak Syndrome. I was transplanted on September 23, 2011.
My name is Heather Kagel. I’m 50 years old and live in Dallas, TX. I was diagnosed with pulmonary fibrosis (PF) in 2013. I’m happy to say I beat the 3 – 5 year life expectancy that many of us hear about. I have a gene mutation called TERC, which is a telomere disorder. Because of this mutation I was also diagnosed with oral cancer in 2016. I’m almost 2 years cancer free. When I’m 5 years cancer free, I can be considered for a lung transplant for my pulmonary fibrosis.