Hi, my name is Nancy Suarez Lee from North Richland Hills, TX. I’m 59 years old and was diagnosed with pulmonary fibrosis (PF) in 1995 as I had a predisposition to PF due to a genetic condition called Hermansky Pudlak Syndrome. I was transplanted on September 23, 2011.
I first learned about patientMpower through Bill Vick, a fellow idiopathic pulmonary fibrosis (IPF) patient and support group leader in TX. I had the pleasure of meeting the patientMpower team in person at the PFF Summit in Nashville in November 2017.
The patientMpower app allows me to digitally store, track and share the daily vitals that I’m required to track post-transplant. I can ditch the paper log and the space it takes to store them! These are important especially for detecting any changes that could indicate rejection of my new lungs. I love the spirometer! The readings are consistent and accurate.