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Meet IPF Researcher Anne-Marie Russell

By January 14, 2018May 1st, 2021No Comments

Hello! My name is Anne Marie Russell. I am a clinical research fellow at National Heart and Lung InstituteRoyal Brompton Hospital and Imperial College with a special interest in interstitial lung disease (ILD) .

I have been involved in clinical research in fibrotic lung disease for the last decade. My research interests are in patient reported outcome measures (PROM); symptom management and optimizing quality of life through patient centered approaches

I was introduced to Eamonn Costello, CEO of patientMpower, through a professional colleague and have seen the patientMpower app grow from a concept to a comprehensive and integral element of the lives of many people diagnosed with idiopathic pulmonary fibrosis (IPF). I am delighted to have the opportunity to work with Eamonn Costello and Colin Edwards and that they have chosen to integrate the IPF PROM into the patientMpower app

Many patients diagnosed with IPF experience challenging symptoms such as severe breathlessness. This can result in feelings of frustration and a lack of control in carrying out daily activities. Having access to the patientMpower app enables some people living with IPF to regain elements of control in managing their condition. The patientMpower app allows the user to record serial objective measurements such as forced vital capacity (FVC) using the integrated spirometer; oxygen saturation and steps walked.

Completing the 13 questions on the IPF PROM objectively records your experiences of breathlessness, energy levels and psychological well being in addition to overall quality of life. Recording these measurements at serial time points can help you to be aware of changes in your symptoms. This can lead to lead to more informed discussions with your healthcare provider

I like the fact that patients can use the patientMpower app according to their own preferences so it suites their individual needs. By consenting to share information collected via the app with the patientMpower digital biobank, patients are helping to shape important research questions for the future. By sharing their data, app users are enabling us to gain greater insight into how IPF behaves over time. Working together in this way will enable us to develop more effective interventions and management strategies of people living with this condition.

Photo image: Anne Marie Russell with Nicola Cassidy from ILFA Ireland at European Respiratory Society meeting 2016.

Weighing Scales

Get valuable health insights by using our Bluetooth connected weighing scales to monitor body weight. Measured values will be transferred directly to the patientMpower application for healthcare professionals to review in real time.

Blood Pressure Monitor

Our Bluetooth enabled blood pressure monitor accurately measures patients’ blood pressure, measured values will be transferred directly to the patientMpower application for healthcare professionals to review in real time.

Pulse Oximeter

Our Bluetooth connected pulse oximeter measures arterial oxygen saturation and heart rate. Measured values will be transferred directly to the patientMpower application for healthcare professionals to review in real time.

Spirometer

Spirobank SMART spirometer - connects to patientMpower app via Bluetooth for seamless recording of pulmonary function. Measured values will be transferred directly to healthcare professionals to review in real time. Measures:

  • Forced Vital Capacity (FVC)
  • Forced Expiratory Volume in 1st second (FEV1)
  • PEF
  • FEV1/FVC
  • FEV6
  • FEF25/75

US Reimbursement for remote monitoring 

How will you get paid? Centers for Medicare and Medicaid Services (CMS) have reimbursement codes available for remote patient monitoring (RPM).

US Reimbursement for remote monitoring 

How will you get paid? Centers for Medicare and Medicaid Services (CMS) have reimbursement codes available for remote patient monitoring (RPM).