Category: Hermansky Pudlak Syndrome

Meet Carmen Who Uses patientMpower to Help Monitor Her Hermansky-Pudlak Syndrome

Monday, April 23rd, 2018

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“The fibrosis of Hermansky Pudlak, like any other pulmonary fibrosis, has no cure. All we can do for now is manage it. patentMpower helps me to do that.” – Carmen In honor of Hermansky-Pudlak Syndrome (HPS) Week we wanted to share the story of Carmen Camacho. Please read on below to learn more about HPS […]

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Meet patientMpower user Nancy Suarez Lee

Thursday, January 18th, 2018

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Hi, my name is Nancy Suarez Lee from North Richland Hills, TX. I’m 59 years old and was diagnosed with pulmonary fibrosis (PF) in 1995 as I had a predisposition to PF due to a genetic condition called Hermansky Pudlak Syndrome.​ I was transplanted on September 23, 2011. I first learned about patientMpower through Bill […]

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