The patientMpower Blog

patientMpower in $1 million IPF Catalyst Challenge

Wednesday, January 17th, 2018

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patientMpower are excited to announce that they have been shortlisted as finalists in the $ 1 million IPF Catalyst Challenge. Speaking in advance of the IPF Catalyst Challenge finals, to be held on January 24th 2018 in Chicago, USA, Eamonn Costello, CEO of patientMpower stated: “Since we started working in IPF in 2016 we have […]

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Meet IPF Researcher Anne-Marie Russell

Sunday, January 14th, 2018

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Hello! My name is Anne Marie Russell. I am a clinical research fellow at National Heart and Lung Institute, Royal Brompton Hospital and Imperial College with a special interest in interstitial lung disease (ILD) . I have been involved in clinical research in fibrotic lung disease for the last decade. My research interests are in […]

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Meet patientMpower user Heather Kagel!

Thursday, January 11th, 2018

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My name is Heather Kagel. I’m 50 years old and live in Dallas, TX. I was diagnosed with pulmonary fibrosis (PF) in 2013. I’m happy to say I beat the 3 – 5 year life expectancy that many of us hear about. I have a gene mutation called TERC, which is a telomere disorder. Because […]

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Fact Friday – January 5 2018

Friday, January 5th, 2018

Fact Friday: Did you know that​​ “Pulmonary fibrosis (PF) is one of a family of related diseases called interstitial lung diseases that can result in lung scarring. As the lung tissue becomes scarred, it interferes with a person’s ability to breathe. In some cases, the cause of pulmonary fibrosis can be found. But most cases […]

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Countries patientMpower supports

Wednesday, December 20th, 2017

Many countries have different names for medicines, with brand names differing from USA to the UK for example. Currently we support USA, Canada, UK, Ireland, Australia, New Zealand, South Africa, Germany, Austria, Spain, Argentina. Not all of these countries have medication databases loaded, but all other aspects of the app are supported. For Spanish and […]

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FVC Explained

Wednesday, November 1st, 2017

Pulmonary Function Tests (PFTs) measure the size of your lungs, how well air moves in and out of your lungs, and how well your lungs bring oxygen into your body. These tests help your medical provider determine the type and severity of lung disease present. They are also used to monitor for response to therapy […]

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Why we ask for your ethnicity

Friday, October 27th, 2017

For Pulmonary Fibrosis and Kidney disease ethnicity is an important factor in being able to calculate certain parameters. For Pulmonary Fibrosis patients, ethnicity affects predicted pulmonary function values. Therefore your ethnicity may be of interest for our research partners to improve IPF treatments, and you can optionally fill this in. Remember no data which identifies […]

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PF Warriors

Tuesday, June 20th, 2017

patientMpower, the makers of an app for patients to help manage their Idiopathic Pulmonary Fibrosis (IPF) treatment are looking for volunteers from the PF Warrior community in Texas to try out a new electronic health diary ‘app’ to see if it is useful for people with lung fibrosis to monitor their health. If you take […]

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patientMpower & ILFA collaboration

Friday, March 10th, 2017

In collaboration with the Irish Lung Fibrosis Association, we are looking for volunteers to test an electronic health diary which we have. If you take part, you would use the app for about a month and then answer a questionnaire to give your feedback. In this survey, you can, if you wish, measure breathing tests at […]

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NKF Annual Conference – Blackpool 2016

Sunday, October 9th, 2016

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It was a packed schedule with inspiring updates from patients along with updates from the NKF, NHS Organ Donation and other people working in promoting Kidney health & research. Timothy Statham gave an overview about the NKF successes in the last year, and outlined the challenges for the upcoming year, with continuing downward pressure on […]

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ICHOM Conference in London

Monday, May 23rd, 2016

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patientMpower attended the annual International Consortium for Health Outcome Measures (ICHOM) conferece in London recently, where thought leaders from around the world came together to discuss how to measure the outcomes that matter to patients and the path towards value based healthcare. Michael E. Porter was among the speakers who told the audience that Healthcare […]

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